数据库集成的标准化练习代码 [英] Standardized exercise codes towards database integration

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问题描述

这是我即将向国家推进转化科学中心提交的一份意见书。   HealthVault似乎非常相关,虽然我很感谢论坛用户对数据库集成和标准化练习的评论
代码 - 它们与集成的相关性如何?  我不是IT人员,我只是看到各种实体开发自己的工具,但似乎不考虑将数据与其他数据库集成的能力,这对研究是有益的。
 我的兴趣是运动肿瘤学,但这个问题适用于其他运动是影响因素和其记录的医疗保健领域。  谢谢!

This is a submission I'm about to make to The National Center for Advancing Translational Sciences.  HealthVault appears to be very relevant, although I'd appreciate comments from forum users regarding database integration and standardized exercise codes - how relevant are they to integration?  I'm not an IT person, I just see various entities developing their own tools but seemingly without regard to the ability to integrate their data with other databases, which would be beneficial for research.  My interests are in exercise oncology but this issue applies to other areas of healthcare where exercise is a factor and where it is being recorded.  Thank you!

RE:NOT-TR-13-001信息索取(RFI):通过以下方式加强社区参与研究临床和转化科学奖(CTSA)计划

RE: NOT-TR-13-001 Request for Information (RFI): Enhancing Community - Engaged Research through the Clinical and Translational Science Awards (CTSA) Program

关于信息技术(IT),医疗保健和数据库整合的可能性(1,2),似乎没有就标准达成一致用于将锻炼或身体活动措施记录到电子健康记录(EHR)或其他
医疗保健IT工具中。  这将使运动倡导者利用数据库集成成为问题,并将限制研究在保险公司,研究人员,机构,基金会以及通过智能手机通用
公共IT用户每天生成和存储数据的时代,应用程序和运动训练设备,如Garmin,fitbit和Microsoft的HealthVault等等。  错过或太迟,不应该出现顺利收集运动数据的机会,因为
似乎就像建立运动或身体活动的标准代码一样简单。

Regarding information technologies (IT), healthcare, and the possibility of database integration (1,2), there does not seem to be agreed upon standards for recording exercise or physical activity measures into electronic health records (EHR) or into other healthcare IT tools.  This will make utilizing database integration problematic for exercise advocates and will limit research in an era when data is being generated and stored daily by insurers, researchers, institutions, foundations, and by general public IT users via smart phones, apps, and exercise training devices such as Garmin, fitbit, and Microsoft's HealthVault, among many others.  To miss, or too delay, the opportunity to smoothly gather exercise data should not occur because of something seemingly as simple as establishing standard codes for exercise or physical activity.

美国农业部在其新的超级跟踪器设备中使用Ainsworth(3)代码,LIVESTRONG似乎也已将其纳入其个人用户培训日志中。   ExeRxcise是Medicine,是美国运动医学学院的一项倡议,
参与建立一项运动"生命体征"。 (4)与南加州Kaiser Permanente合作,记录每周中等强度运动的分钟数。  护士健康研究(5),使用问卷调查记录步行,运动,骑自行车,游泳,网球或有氧运动机器使用,他们的数据库代码是我不知道的。  从个人对话中我了解到,United HealthCare有一个用户输入的练习工具,但他们的代码我也不知道。  
美国癌症研究所有一个持续更新项目,该项目努力保持体力活动的建议,其中包括最新的科学证据,然而,这些建议取决于解释每项新研究
研究的锻炼措施。  这些利益相关者中有很多记录,但缺乏标准化记录,这可能会限制Campbell(6)提到的证据翻译。

The USDA uses Ainsworth (3) codes in their new Super Tracker device, which LIVESTRONG also appears to have incorporated into their individual user training logs.  ExeRxcise is Medicine, an initiative of the American College of Sports Medicine, has been involved in establishing an exercise "vital sign" (4) in collaboration with Kaiser Permanente Southern California to record minutes per week of moderate to vigorous exercise.  The Nurses' Health Study (5), uses questionnaires to record walking, running, biking, swimming, tennis, or aerobic exercise machine use, what their database codes are I don't know.  From personal conversations I understand that United HealthCare has a user-entered exercise tool but their codes I do not know either.  The American Institute for Cancer Research has a Continuous Update Project that endeavors to keep recommendations on physical activity, among others, current with new scientific evidence, however, these recommendations are dependent on interpreting each new research study's exercise measures.  There is a lot being recorded among just these stakeholders but standardized recording is lacking, which can limit translation of evidence as mentioned by Campbell (6).

其他利益相关者正在开发医疗IT工具,遗憾的是缺乏锻炼领域,而其他工具已经开发出来,缺乏锻炼或身体活动领域。  纠正缺少的锻炼和身体活动领域,
和/或更多,如果将这些字段的代码标准化为新的IT工具,应该是翻译基础设施中重要的初始步骤。  这需要利益相关方之间的合作,以建立代码,然后可以向IT开发人员提供
,以便纳入医疗保健工具。

Other stakeholders are developing healthcare IT tools that unfortunately lack exercise fields, while other tools have already been developed that lack exercise or physical activity fields.  Rectifying missing exercise and physical activity fields, and/or more so, standardizing the codes for these fields when they are included in new IT tools, should be an important initial step in a translational infrastructure.  This will require collaboration among stakeholders to establish codes that can then be given to IT developers for incorporation into healthcare tools.

(1)研究成本,癌症治疗的功效。癌症发现,2012年9月,2; 757。

(1) Studying Cost, Efficacy of Cancer Care. Cancer Discovery, September 2012, 2;757.

(2)Digiulo S.生存关怀差距:交付模式 - 什么有效,什么不可行。肿瘤学时报,2010年9月10日,Vol。 34,第17期,第11-13页。

(2) Digiulo S. The Survivorship Care Gap: Delivery Models-What Works, What Doesn't. Oncology Times, September 10, 2010, Vol. 34, No. 17, pp. 11-13.

(3)  Ainsworth BE,et al。 体育活动纲要:活动代码和MET强度的更新。 MED 科学。运动练习。,Vol。 32,No。9,Suppl。,pp.S358-S516,2000。

(3) Ainsworth BE, et al. Compendium of Physical Activities: an update of activity codes and MET intensities. Med. Sci. Sports Exerc., Vol. 32, No. 9, Suppl., pp. S498-S516, 2000.

(4)Coleman KJ,et al。初步验证和锻炼"生命体征"在电子病历。医学。科学。运动练习。,Vol。 44,第11期,第2071-2076页,2012年。

(4) Coleman KJ, et al. Initial Validation of and Exercise "Vital Sign" in Electronic Medical Records. Med. Sci. Sports Exerc., Vol. 44, No. 11, pp. 2071-2076, 2012.

(5)护士健康研究[互联网]。哈佛医学院。调查问卷来自:http://www.channing.harvard.edu/nhs/questionnaires/pdfs/NHSI/2010.pdf

(5) Nurses' Health Study [Internet]. Harvard Medical School. Questionnaire available from:http://www.channing.harvard.edu/nhs/questionnaires/pdfs/NHSI/2010.pdf

(6)Campbell KL,Neil SE,Winters-Stone KM。回顾乳腺癌幸存者的运动研究:注意运动训练的原则。 Br J Sports Med 2012; 46:909-916。

(6) Campbell KL, Neil SE, Winters-Stone KM. Review of exercise studies in breast cancer survivors: attention to principles of exercise training. Br J Sports Med 2012;46:909-916.

推荐答案

您好,

HealthVault数据模型定义了
练习数据类型
。您会注意到活动类型被定义为"可编码值",这意味着该字段可以使用词汇表中的值进行编码。 HealthVault确实为
提供内置词汇
运动活动
。当然,应用程序不仅限于使用我们的词汇表对这些数据进行编码。在存在行业标准词汇表的情况下,也可以使用那些词汇表以允许更好的语义互操作数据。我希望这个
是您提交的有用信息。如果您有任何问题或意见,很高兴再次讨论。

The HealthVault data model defines an Excercise data type. You'll notice the activity type is defined as a "codable-value", meaning the field can be coded with values from vocabularies. HealthVault does provide a built-in vocabulary for Excercise Activities. Of course, applications are not restricted to coding this data using only our vocabularies. Where there are industry standard vocabularies, those can be used as well to allow for better semantic interop of the data. I hope this is useful information for your submission. Happy to discuss furthur if you have any questions or comments.


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